Forum Style

Asking for feedback on your healthcare experience

Hello, 

My name is Tara, I am a post-heart transplant coordinator at Allegheny General Hospital in Pittsburgh. One of our biggest roles as coordinators is education. I work with a wonderful group and think that we are doing some of the best work in transplant. However, due to the limited research on the transplant coordinator role I would like to ask everyone what we can do better. No holding back! I'd love to hear everyone's critique, your words and advice will help future transplant patients. No matter how grateful you are, or how wonderful your team is, I'm sure that you still have valuable advice for how we can improve. In the end my goal is to produce an app that will be given to everyone once they are made 1A status. It will guide them through the post-transplant life by reinforcing aspects of their care that are necessary for health maintenance. 

Specifically I would like to know about your pre/post transplant education experience. 

Is there anything that you wish you knew more about?

Did you have any complications that you feel could have been prevented through better education?

Did you feel prepared for everything? How much education did you receive? 

Was there something in particular that you found especially helpful?

Please feel free to elaborate on these questions and talk about what hurdles you had to overcome due to inadequate education. I would love to hear from you!

And while we are at it, please give all general advice, what can we do to be better overall? 

Thank you!!

And for everyone waiting, hang in there- you never know when you will get the call. Best wishes to all, we all are working hard to promote transplant awareness!

Thank you,

Tara

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

Email me when people reply –

Facebook & instagram

Transplant News

   

                      Transplant News

Twitter

COTA

Purolator Air Filters

Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need for a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

Latest Activity

David left a comment for James Martin
24 minutes ago
David left a comment for Brian & Nikki Davis
24 minutes ago
James Martin is now a member of Liver Transplants
25 minutes ago
James Martin and Brian & Nikki Davis joined TransplantFriends.com
25 minutes ago
David liked DAP1122 (Don)'s blog post Giving To Others
27 minutes ago
Antoinetta M. Durian replied to William C. Reid's discussion Lung transplant and age
38 minutes ago
DAP1122 (Don) posted a blog post
5 hours ago
luoming replied to luoming's discussion Cycling to share the gift of life
10 hours ago
More…

Lung Transplant Foundation

Contact Us