Hello, Reposting here as I work with heart transplant patients:
My name is Tara, I am a post-heart transplant coordinator at Allegheny General Hospital in Pittsburgh. One of our biggest roles as coordinators is education. I work with a wonderful group and think that we are doing some of the best work in transplant. However, due to the limited research on the transplant coordinator role I would like to ask everyone what we can do better. No holding back! I'd love to hear everyone's critique, your words and advice will help future transplant patients. No matter how grateful you are, or how wonderful your team is, I'm sure that you still have valuable advice for how we can improve. In the end my goal is to produce an app that will be given to everyone once they are made 1A status. It will guide them through the post-transplant life by reinforcing aspects of their care that are necessary for health maintenance.
Specifically I would like to know about your pre/post transplant education experience.
Is there anything that you wish you knew more about?
Did you have any complications that you feel could have been prevented through better education?
Did you feel prepared for everything? How much education did you receive?
Was there something in particular that you found especially helpful?
Please feel free to elaborate on these questions and talk about what hurdles you had to overcome due to inadequate education. I would love to hear from you!
And while we are at it, please give all general advice, what can we do to be better overall?
And for everyone waiting, hang in there- you never know when you will get the call. Best wishes to all, we all are working hard to promote transplant awareness!