Forum Style


  • Hi Carole

    I am sorry but I never heard of this diagnois before.  The only thing I would suggest to you would be to try and enhance the quality of life that you currently have by continuing good nutrtion- getting rest and exercising when you can..

    Wishing you well


  • Hi Carole

    Can you explain how this affects someone?

    • Rise,Glad too. i had a double lung transplant in May 2011.  In February 2013 my TP team told me that I may be headed towards chronic lung rejection.  I saw them again this past week, and they said it did not seem to be chronic lung rejection, but rather Chronic Lung Allograft Dysfunction, otherwise known as "CLAD".  The physician explained that it is like rejection, but does not meet the criteria used to define chronic lung rejection. He told me a bit more, and I of course have been scouring the web, and have found that it seems very much like chronic lung rejection - not a whole lot of treatment options, and an unknown progression.  Lots of unknowns scares me, and I was looking to this web group to see if anyone else had any knowledge or experience with CLAD. 



This reply was deleted.

More from Forum Style

Thank you!! 10th multivisceral transplant anniversary!

Because today marks the tenth anniversary of my multivisceral transplant in which I got a new spleen, liver, pancreas, stomach, small and large intestine, I want to: T: Thank E: Every N: Name T: That E: Encouraged N: Now!! This forum here has been an integral part of my journey since my transplant, and I feel this is a good day to express my gratitude to everyone here. For me: T: Transplants R: Recall A: And N: Name S: Special P: People L: Loving A: Another's N: Needs T: Thoroughly. This refers…

Read more…
1 Reply · Reply by Hostess Rise 4 hours ago

Tacro and Lymph Node

Good evening, At a recent appointment my husband was told that if he notices a swollen node he should skip his tacro and call the doctor immediately. His last labs were last month and all was good. Tonight he noticed that the lower left front of his neck appears puffy. We are not sure if it is a lymph node or not. There is nothing hard but he said it is tender to touch. He has no fever or other symptoms. Any advice or info is appreciated. 

Read more…
1 Reply · Reply by Michael Bischoff 17 hours ago

Male Kidney Recipient..ONLY 3 MONTHS OLD kidney. We want to have a child..PLEASE ADVICE.

Hello everyone. I am new in this site but it has been helpful reading different experiences here. This is my story; I am 35 years old now. I got married on January 2014..Two months later my legs started swelling and I also developed vision problems...everything seemed blurry...traffic lights, television etc. I went to see an optometrist and she immediately sent me to ER. I was admitted the same day for hypertension 116/208. The following day a doctor came in and referred to herself as a…

Read more…
2 Replies · Reply by Al Mack yesterday

Help Save Lives

FACEBOOK Transplant Buddies Awareness ART Hi Transplant Buddies and Friends! Please help me to spread the message of Organ Donation by sharing our Art on Face Book You just never know who will see your ART that you shared! We are almost at 10,000 Likes and each day we have over 96,000 people viewing our ART!! That is a whole lot of people and you never know who will become inspired to become an organ donor.  We are also showing our appreciation to our Donor Families as we have many donor…

Read more…
0 Replies