Forum Style

CMV Virus

Hey everyone. I'm 27. I just received a kidney and pancreas transplant in December 2017. It's been about 5 months since transplant. I'm now having issues with my cmv level raising for the first time. They are wanting me to do the research with the oral medicine maribavir or iv form medicine foscornet. Has anyone dealt with either medicine or the research or just having cmv and what options did you have. I'm currently taking valcyte 2 pills twice a day. Any feedback will be greatly appreciated

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

Email me when people reply –

Replies

  • Hi, I had a tx in the same month and just stopped Valcyte after 2 weeks of treatment. My CMV was at 5,600 but now is less than 137. My issue is that the CMV and Valcyte dropped my WBC to 1.9 and my ANC to .4. I have had to stop my Cellcept and start 5 of Prednisone.. I was previously on a steroid avoidance program. I am small and only weigh. 98 lbs, so that may be a factor. I am taking Neupogen injections and hope with time to get back on Cellcept. I believe from reading this is a common time for CMV to activate after tx. I don't have any experience with the research meds..I hope this helps a little.

This reply was deleted.

Transplant News

   

                      Transplant News

Twitter

COTA

Purolator Air Filters

Facebook & instagram

Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need for a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

Latest Activity

Neal Tailor replied to Sami Hill's discussion Working out and Turning 21
2 hours ago
Neal Tailor replied to Guillaume G's discussion Discomfort, gas and tingle - Kidney transplant
2 hours ago
Pablojw posted a blog post
3 hours ago
Sami Hill posted a discussion
4 hours ago
Working out and Turning 21 via Kidney-Pancreas - Forum Style - TransplantFriends.com
4 hours ago
David left a comment for Jenny Vallot
4 hours ago
Jenny Vallot is now a member of TransplantFriends.com
4 hours ago
More…

Lung Transplant Foundation

Contact Us