So my lung transplant team has set up an online medical records called MyChart in the past few months. That way patients can see test results and their medical record. And through MyChart, I found out that I have CKD (chronic kidney disease) stage 3. No one has ever told me this before. I called my transplant coordinator to check and she said it's true and due to the immunosuppressant drugs. I take prednisone, prograf, and myfortic. My dosage of prograf is pretty high for some reason (4mg in morning and 4mg at night). So I'm wondering if a lot of other people have this and if so, how do you manage? I do drink as much water as I can yet my creatine and bun are still high. I don't want this to get worse. I do little things that are supposed to help it such as eating cinnamon and eat healthy. I don't know what else to do. I'm almost 4 years post double lung and liver transplant.
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