Forum Style

HLA "potential" incompatible

Hi all, I have a kidney donor and we have been cleared/matched for transplant later this year.  Coordinator called and stated that I have 2 "potential" antibodies to donors antigens, and that I should go NOW with tx instead of waiting because I could develop antibodies and then could NOT do the tx.  I am confused, please send any information, as I am thinking if I develop these won't I reject down the road?? any info, articles, etc appreciated. J. 

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

Email me when people reply –

Replies

  • Hi Jane,

    I had a HLA incompatible transplant. A class 2 antigen was removed by plasmapheresis. I am now 18 months post transplant and doing fine.

    Let me know if you have any further questions

    Regards

    Nipun

    • Thank you Nipun for your reply.  I do not have incompatible (at this point) they are calling two of the antibodies "potential" (could develop into incompatible).  So I am scheduled to have tx in 3 weeks. Question, for your antirejection meds, are you on the "normal" dose most transplant patients take? Also, how are these meds affecting your body? Any side effects or problems? Thanks so much.  Jane

      • Hi Jane

        Yes, I am on a normal dosage which are as below:-

        Prograf: 1/.5 mg (Tacrolimus Level - 6)

        Cellcept: 750/500 mg

        Omnacortil (prednisolone) - 5 mg

        My creatnine level is now stable at 1.3. The medicine dosage varies from person to person.

        I underwent kidney transplant post 3 sessions of plasmapheresis. Also, I was monitored twice for the antigen count and was discharged on sixth day post transplant.  I do not have any side affects as of now.

        In your case the doctors will also monitor the antigen count through a simple blood test. Have faith on your transplant team.

        All the very best for your surgery

        Regards

        Nipun

  • Hi Jane,

    After a Tx, you will be immunosuppressed and the medications you take should prevent the development of any new antibodies.  These powerful meds keep the immune system from "finding" the Tx organ.  I added  a link to the National Kidney Foundation site to help answer some questions.  You can always ask your friends here about any other issues.  Good luck!

    NKF info

    • Thank you kidney boy. This is a great place to get feedback from people who have. " been there..."
This reply was deleted.

Purolator Air Filters

Facebook & instagram

Transplant News

   

                      Transplant News

Twitter

Latest Activity

David liked DAP1122 (Don)'s blog post Miracles
5 hours ago
DAP1122 (Don) posted a blog post
5 hours ago
Ritesh Kala and Aarushi are now friends
8 hours ago
jiahuan and Joey Reich joined TransplantFriends.com
9 hours ago
Sandy updated their profile
11 hours ago
Joey Reich updated their profile photo
13 hours ago
Duane Kellar left a comment for Chris Dines
15 hours ago
Duane Kellar left a comment for Kent Crudup
15 hours ago
More…

Contact Us