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No extra energy.

Hi!

I've been going to college full-time and have been working really hard to get good grades. I had my liver transplant 9 months ago, so I just came back to school in January. Anyways, after I come home from school I have absolutely no energy for anything else. When someone asks to hang out, I just can't because I'm so exhausted from just three lecture classes. I go to school every three days, with days off in between but it still doesn't matter if I have that extra break, I have no energy for anything else except for doing homework. No socializing, no job, no energy. Is this to be expected at 9 months post Tx? The campus is large, so I  have to walk a bit to get to classes. Anyways, I guess my question is: is this complete lack of energy still to be expected after 9 months? And are there any good ways to increase energy levels? Note: All labs have looked good so far, except for a bit higher creatinine and B.U.N., but no extreme cause for concern. I know I shouldn't be complaining, and things are so much better than they used to be, but it can be frustrating. Thanks!

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Replies

  • Hi Katie, from my point of view you must remember that you had a double liver transplant and it takes time to get into your normal routine again. Your body still needs to adapt and recover from this trauma. My double liver transplant was two years ago. Your recovery was remarkable and that is a good thing. I also felt that I wanted to return to work asap but the doctors recommended that I have to take it easy. I started gradually, first from home only working a half day, then after two months like this I returned to work working only 3 days a week. Then in January 2016 I went back full time to work.

    Look forward and do not push yourself to hard. You know your body. If you feel tired then you need to rest. You are doing great already. I feel now much better than before and I am enjoying good and excellent health now. 

  • Katie, you must remember also your body has to first recover from what was happening to it before the transplant. Then you will slowing gain the strength you once had. 

    Now mind you I can't run a marathon (never could before) but I sure can run circles around myself from a year ago. 

    So exercise, and stay healthy and things will get better!  

  • Hi Katie, God Bless you. You have been through so much. I agree with Joan and Cora. Just try to take it easy and don't put to much pressure on yourself. The meds do take a toll on your energy. I have a grandson your age so I know the social life most young people try to keep. You will be back to your norm in good time. Don't be so hard on yourself. I always say Easy, Easy. Be well. Mary
  • For many years after tx, I have had energy in the morning. But at around 2-3 pm in the afternoon, I feel very sleepy. I take afternoon nap for few hours everyday. When I sleep, I feel very exhausted. However, after a nap, I feel good and normal again.

    Don't put too much stress on yourself. Health is the number one priority. Start your school slowly. You have long and good life ahead of you.

    Good luck to your school.
  • While everyone is different post tx, I found that I didn't begin to hit my stride (I had a kidney tx) until about the year and a half mark. Your body has not only had a huge surgery, it's also dealing with a massive chemical change due to the new liver. And then additional chemical changes due to the transplant drugs. To be honest, I'm really impressed that you can do so much. There's no way I would have been able to go back to school what with the brain fog due to the drugs.

    While I can't make predictions, I strongly suspect that if you are careful, you will be getting more energy in the next 3 - 6 months. But in the meantime, talk to your transplant team and see if they have any tricks for you.

    • Thanks Cora! I feel appreciated, I always feel like I should be doing so much more than I am! :) I truly hope that I will start to gain some more energy soon. I guess I felt like I would bounce back straight away after my transplant, but when you say that there is more than just the physical aspect, but also the chemical aspect that makes sense. Thanks again for the response. 

      • I get the optimism post transplant. And the transplant people don't want to spoil that. But I'll tell you what I used to teach my classes when I was teaching CPR. The person you did the procedure on is not going to jump up, hand you a twenty buck tip, and then run off to play tennis. And transplant, in that regard, isn't any different than any other medical crisis. It takes some time for you to fully recover.

        Give it time and you will feel fully "normal" again. I know it's hard to be patient, but try to remember how slow moving you were before.

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