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Post Kidney Transplant Creatinine Level

Hi Everybody,

For those of you that have had your transplants for awhile, I am wondering what you creatinine levels are? I was just transplanted 4 weeks ago and the lowest that mine has gotten is 1.76 and every time that they increase my prograf the creatinine goes up. The transplant clinic is saying that my creatinine needs to be below 1.5. I have asked what happens if it doesn't get there and they said that maybe it would indicate that the new kidney has an issue. I thought that 1.76 was great because my creatinine was 11.7 pre transplant. If you have had your transplant for many years do you remember what it started at and how is it now? Thanks for your input.

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Replies

  • How is Fred doing now?

  • After 18 months of my transplant, I have seen numbers as low as 0.8 up to 1.8. The fluctuation in the first six months was very common specially that I Had CMV for 3 months and Hepatitis C for another 3 months, both where luckily treated with no severe effect on my dear new kidney :). For the past year it has been steadily moving between 1.1 and 1.4 mostly settling at 1.3.
  • My first Tx had a CR  of 1.3 and went up to 1.5 and stayed there for through 11 years.  My second has been 1.5 for almost three years now.  Both were cadaver organs.  Males tend to have slightly higher CR levels.  Prograf can raise creatinine when the level is too high.  Cadaver organs can "sleep" for up to four weeks before waking to full function.  Whatever the issue have faith in the Tx team to find the answer.  Your job is to try to stay calm while everything works out.  Oh ya,  remember to breathe every now and then too.

    • That's perfect advice. I received my deceased donor TX April 29th 2017, last labs which were my best, had creatinine of 1.48 which gives me 55% function.
      First 3 weeks I was freaking over my creatinine, now it's all looking good.
  • Fred, did you have a living donor or cadaver? On 3/17 my kidney started out at a creatinine of 12 then in 3 days came down to 1.43! But then I got VERY scared as it went all the way 2.73 over the next 3 weeks! Then they gave me 16 hours of IV fluid in the hospital and that woke my kidney up! It's been going down ever since and now I'm at 1.33! I had a living donor too.
  • I've only had mine for 2 weeks, but I'm just so happy with the changes!  When I got to the hospital, my Creatinine had gone up to 22 which I didn't even think was possible.  My last results showed it at 0.7 !! It's crazy looking at my results now & seeing that everything's in normal range.   I'm hoping it stays like that! 

  • Hi ,I had my transplant on Aug 2015 and from Nov 2015 to Feb 2016 , my creatinine was 1 .. i was taking 9 mg tacrolimus till Jan and reduced to 6 mg.im goin to gym these days and doing cardio .  last two weeks  my creatinine readings were 1.4  , 1.1, 1.3, 1.4 . i dont have any other difficulties, but now im worried abt this fluctuations. any advice plz  

    • Creatine is NOT the only tool in the box for doctors to measure kidney function. Creatinine levels fluctuate regularly and is mainly used to identify trends over days or weeks.  It is affected by so many factors (hydration, illness, medications, exertion and much more,) so it cannot be used by itself. I believe it never stays the same and a range of a few tenths is normal, as long as it does not steadily rise.

      • Good answer! I just got a variation of .2 from an Urgent Care clinic which is NOT my normal lab.

        I'm usually 1.3 but I got a 1.5 yet my potassium and BUN were virtually the same and my urinalysis was PERFECT so I'm sure this is normal fluctuation along with a different lab doing the tests.
  • I had my kidney transplant on Aug 6 of last year (2014).  My creatinine was 0.66 in my last blood test earlier this week.  I take a holistic approach to taking care of my kidney with the hope that it will last a long, long time.  I really don't want to go back to dialysis!

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