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Remember the video of young Ari's learning about his new heart featured in recent  issues here?  (if not, his life story is detailed in a timeline of his inspiring videos below)  


The world just received the sad news that after a five year lifetime of over 20 surgeries including that touching heart transplant series of videos shared on YouTube, Ari Schwartz died on July 27th.       

With his short life he touched the world in so many inspirational ways as you can see in this collection of videos that follow ('tissue alert!').   

RIP: Ari, 5yr old heart recipient
1 month home with surprise visitor

For those following Ari's challenging heart transplant story, there's sad news that after an inspiring too short life story, Ali Schwartz  passed away July 27, 2017.  

Our condolences go out to his loving family, his donor family and the health and transplant professionals who supported this amazing young man throughout his life of over 20 surgeries since being born with heart issues.

Watch the story as captured in family videos over time below (click on each item to link to that video):
Post-transplant cancer: Hopeful progress:
Scientists create a catalog of cancer's weaknesses

 

Don't miss the news, links and opportunities that follow including. . . 
  • news about scientists creating a new catalog of cancer weaknesses
  • a link to the recently announced DLA ECHO video contest winners

and . . .   

  • a new AST collection of on-line patient resources (including TRIO!)
  
E-New editor and TRIO president
GleasonJim@aol.com
 
More insights of higher risk post-transplant cancer risk in time for your Summer sun exposure caution 
beach-chairs-header.jpg

     Kidney (and all) transplant recipients are at greater risk of developing melanoma than the general population, according to a new study.
     The study also identified risk factors for melanoma among kidney transplant patients, and these include older age, white race, use of sirolimus or cyclosporine, and receipt of a kidney from a living donor.
      "We believe that the risk factors we identified can guide clinicians in providing adequate care for patients in this vulnerable group," investigators concluded in JAMA Dermatology
**********************************************************************
But be sure to protect that gift of life by taking precautions as described in the links below or by researching skin cancer prevention and treatments on our TRIO post-transplant cancer web site at
*************************************************************************************
. . . and repeating these important cautions:
What to look out for . . .
Summer is here and that means people will be spending more time at outside. While it feels good to catch some rays, it is always important to watch your exposure to the sun.  Over the past three decades, more people have had skin cancer than all other cancers combined. In fact, according to the National Cancer Institute, one-in-five Americans will develop skin cancer in the course of their lifetime. (click here to continue reading about the various types and signs of skin-cancer: http://blogs.cooperhealth.org/news/2017/06/spotting-skin-changes-skin-cancer-prevention/ )
9 Surprising Facts About Melanoma:
Information You Need to Prevent This Potentially Deadly Skin Cancer  
      There are good reasons to fear melanoma, a skin cancer, but there's also some good news about its treatment - and cure... When it comes to melanoma, what you don't know can hurt you.  
      Melanoma is the most dangerous form of skin cancer. The American Cancer Society estimates that nearly 145,000 people in the U.S. will be diagnosed with new cases of melanoma in 2016. About 10,000 will die from it. That's an average of one death every hour. Click here to learn more on this important subject 
AST offers links to patient resources including TRIO
click banner to connect

The AST has put together a list of resources for patients and patient families. 
Please click here to visit the following links to learn more 
Some quick follow- on clickable items of interest . . .
What you eat and how 
much you move can help reduce your cancer risk.
AICR's CAN PREVENT 
Action Planner has daily 
cancer prevention tips and 
guidelines to help you 
move more and eat 
smarter.
Click on the image above to download this free planner
click to connect to PTC
TRIO's PTC (post-transplant cancer) web site
We need your help in finding funder support for this important transplant educational resource, first step in TRIO's 5-year PTC program.  

E-mail Sylvia in the national office at info@trioweb.org if you can help with contacts or ideas
Click to learn how . . .
Support TRIO through
Amazon Smile
Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to TRIO  by starting your shopping at smile.amazon.com and selecting TRIO as your charity.
Stay Connected with TRIO on-line at http://TRIOweb.org or http://TRIOwebPTC.org and:
 

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Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need of a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

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