Forum Style

Very Low White blood cells (WBC)

Hi,

I am 3 months post Kidney Tx and last week my WBC's count came out very low (1.2). My doctor immediately stopped Valcyte and reduced Myfortic dose to 360mg a day from 1080mg a day. Today I had repeat lab after 5 days and my count is still very low (1.5), especially my Neutrophils count (0.36). So, my doctor sent me to see a Hematologist, who recommended a shot of Neulasta. I am worried about the side-effects of this shot which I read can be excruciating bone pain. I am confused if I should go for the shot or not or wait for WBC to increase slowly (which my doctor told will since from today he suggested to stop taking myfortic for a week). 

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

Email me when people reply –

Replies

  • Any suggestions or feedback for the Neulasta injection?

    • Sorry Rushi. I was having some problems posting.

      I had very low WBCs (due to a CMV infection - have you been tested?). I was on neulasta and had no problems. While pain is listed as one of the side effects, and it does happen, listed side effects are not a guarantee.

      There's no point in being worried or scared about something that hasn't happened yet. If you have severe pain (and for some, the pain is nothing worse than a muscle ache grade pain) then you simply stop the neulasta and the pain will go away. Simple.

      While there's no harm in waiting for a bit, there are also inherent dangers in very low WBCs - you could catch something that requires a lot more intervention than a simple neulasta shot.

      So, if things don't improve in short order, give it a try. If it doesn't help, or if the pain is too bad, stop the drug and the pain will go away.

      • Thanks Cora for your guidance. This is really helpful. They did test CMV and it came out "undetectable", which is great. I have taken appointment for the shot on Monday. I also have labs today. Hopefully all is good. 

This reply was deleted.

Transplant News

   

                      Transplant News

Twitter

COTA

Purolator Air Filters

Facebook & instagram

Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need for a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

Latest Activity

Linda stradford left a comment for David
1 hour ago
David left a comment for BHUPENDER SABHARWAL
1 hour ago
David left a comment for Linda stradford
1 hour ago
BHUPENDER SABHARWAL, Linda stradford, Toni Hadlee and 2 more joined TransplantFriends.com
1 hour ago
Tom Schultz replied to Andres Patino's discussion What are your Tacrolimus Levels?
1 hour ago
Theo replied to Andres Patino's discussion What are your Tacrolimus Levels?
1 hour ago
Theo left a comment on Liver Transplants
1 hour ago
Theo is now a member of Liver Transplants
1 hour ago
More…

Lung Transplant Foundation

Contact Us