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  • 4-years post liver TX.  I take 1mg, twice per day.  My troughs are 5.0.

    • I am 15 months post transplant. I hate Prograf because I believe it is causing my diabetes, feet hurting and the shakes, sweating.Do you have any issues with that drug and how long are you expected to take it? 

      • I'm 16 yrs post kidney transplant. I'm taking 1.5 mL everyday. There are many small problems such as shaking and skin problems. They come and go away over the times. Pre-diabetes, diabetes, weight gain can be minimized through exercises and controlling of food-portions.

        My Tacro level is around 4-5.

        Thank God and my hero donor for another day. Everything else is irrelevant.

        Good luck and take care.
      • Hello, Theo! I have been on Prograf for the last 3 years and will be for as long as this kidney works and I hope it is for life!. So, far I have not had any issues with it other than colds taking longer to recover from, high sunburn risk and insomnia. Regarding diabetes, I understood that the med is taking a toll on my body so I change a few things on my diet and added exercise 4 to 5 days a week.

        keeps making changes to your diet. I believe it plays a big role.

      • Hi Leo
        The tac is something you have to take for life. They will adjust it to suit your trough needs.

        Tom
  • Hey Andres ,  7 yrs post heart my levels are 5.0  to 5.9

    I  take 1.5 mgs  daily

    • Congrats on you 7 yrs! 
      That is a lower dose than what I take (2mg twice daily) and a higher level. I guess it also depends on how the body metabolizes it.

      Best wishes

  • Hi Andreas,

    I am 8 months post liver Tx. Last blood work my tac was 9 and they have lowered me to 4 mg twice a day. Down from 5 mg twice a day, my levels are usually in the 6 to 7 range pretty consistently.

    Best of Luck

    • Thanks, Tom! 

      I remember mine was about the same range 8 months post tx but now it's even below the range. worries me for the long run.

  • The desired level depends on the doctor and his or her goals for the patient and more than likely what transplant took place. In my case, I had a multivisceral transplant, and my tacrolimus blood levels go between 5-7 without my transplant team being concerned.  Best of wishes to you. 

    Warm regards,

    Bobbiejo

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