Forum Style

Replies

  • 4-years post liver TX.  I take 1mg, twice per day.  My troughs are 5.0.

    • I am 15 months post transplant. I hate Prograf because I believe it is causing my diabetes, feet hurting and the shakes, sweating.Do you have any issues with that drug and how long are you expected to take it? 

      • I'm 16 yrs post kidney transplant. I'm taking 1.5 mL everyday. There are many small problems such as shaking and skin problems. They come and go away over the times. Pre-diabetes, diabetes, weight gain can be minimized through exercises and controlling of food-portions.

        My Tacro level is around 4-5.

        Thank God and my hero donor for another day. Everything else is irrelevant.

        Good luck and take care.
      • Hello, Theo! I have been on Prograf for the last 3 years and will be for as long as this kidney works and I hope it is for life!. So, far I have not had any issues with it other than colds taking longer to recover from, high sunburn risk and insomnia. Regarding diabetes, I understood that the med is taking a toll on my body so I change a few things on my diet and added exercise 4 to 5 days a week.

        keeps making changes to your diet. I believe it plays a big role.

      • Hi Leo
        The tac is something you have to take for life. They will adjust it to suit your trough needs.

        Tom
  • Hey Andres ,  7 yrs post heart my levels are 5.0  to 5.9

    I  take 1.5 mgs  daily

    • Congrats on you 7 yrs! 
      That is a lower dose than what I take (2mg twice daily) and a higher level. I guess it also depends on how the body metabolizes it.

      Best wishes

  • Hi Andreas,

    I am 8 months post liver Tx. Last blood work my tac was 9 and they have lowered me to 4 mg twice a day. Down from 5 mg twice a day, my levels are usually in the 6 to 7 range pretty consistently.

    Best of Luck

    • Thanks, Tom! 

      I remember mine was about the same range 8 months post tx but now it's even below the range. worries me for the long run.

  • The desired level depends on the doctor and his or her goals for the patient and more than likely what transplant took place. In my case, I had a multivisceral transplant, and my tacrolimus blood levels go between 5-7 without my transplant team being concerned.  Best of wishes to you. 

    Warm regards,

    Bobbiejo

This reply was deleted.

Transplant Stories

Members Stories

Transplant News

   

                      Transplant News

Twitter

COTA

Purolator Air Filters

Thank You

Each month, it costs $60.00 to operate TransplantFriends.com We greatly appreciate your support.

Facebook & instagram

Planetary Biosciences for Cystic Fibrosis

Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need of a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

Latest Activity

Steve Pearson replied to Steve Pearson's discussion Transition from Prograf to Sirolimus
4 hours ago
Russell Rogers replied to Russell Rogers's discussion Thanks for the add.
6 hours ago
Lisa replied to Yvonne's discussion Just Wondering?
7 hours ago
Rushi replied to Russell Rogers's discussion Thanks for the add.
7 hours ago
Bobbiejo replied to Kidneyboy's discussion Thanksgiving!
9 hours ago
Rushi replied to Kidneyboy's discussion Thanksgiving!
10 hours ago
Russell Rogers posted a discussion
11 hours ago
Thanks for the add. via Kidney-Pancreas - Forum Style - TransplantFriends.com
11 hours ago
More…

Lung Transplant Foundation

Contact Us