About Me

Were you a member of our Forum on http://TransplantBuddies.com

No


Where did you hear about Transplant Friends?

internet search


Are You Male or Female?

Female


Share - which illness led up to you needing a transplant?

Fibrolamellar hepatocellular carcinoma


Which Organ(s) did you receive? If you are on the waiting list, please share.

It is my 14 year old daughter who is on the waiting list. She was diagnosed with this rare form of primary liver cancer last summer. The tumor was removed leaving positive margins in the hepatic vein. No lymph node involvement tho they were removed anyway.


Drugs, vitamins, favorite foods

Echinacea, Prozac abilify vit D Ativan clonazepam


How many years have you had your Transplant for?

not yet waiting for 6 months


I am Interested in Transplant Friends because...

The anxiety for my daughter, I and family is so intense we we feel so alone. The stress waiting is wreaking mental havoc on us all and would so very much love to talk to others


Which Transplant Center has or will perform your life saving surgery?

VGH Vancouver BC Dr Charles Scudamore


Share how your transplant experience changed your life?

we feel paralyzed with fear waiting, I don't know what else to say that doesn't sum it up. Some days the numbness helps a lot but most it is a raw frusterating, terrifying ordeal and trying to cope with an adolescent having cancer and needing a transplant with her emotional status seems like torture.


Share whatever information you want us to know about you

My daughter was admitted to hospital a week ago for reasons that are related to the mental anquish with her fear towards the surgery. We feel trapped between having a normal fear and one that is so severe it could disqualify her for the transplant. Mental health is involved, but still waiting for the counselor and info to come forth as it is a slow public service. There are psych referrals into our local child psychiatrists, she is being followed by a Vancouver children's psychiatrist in the mean time for her medications ( Abilify and Prozac) to keep her calm with prn Ativan and clonazepam


Share your interests and hobbies

her interests are photography, and mostly friends at her age. Most of her interests are dulled by the depression


What Part of The World Do you Live? Feel free to share city, state, country

vancouver island courtenay area bc


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Comments

  • Greetings and Welcome to Transplants Friends, Dawn. And try to join us in the chat room Saturdays and Sundays at 3 pm EST / 12pm PST. Take care and your daughter.

  • Hello Dawn

    Welcome and I am happy you found us. I hope your daughter can find some comfort in understanding that with a new liver she will be able to live a life free of mental and physical pain.  There is hope and that is something that maybe you can talk to her about.

    HUGS

    Rise'

This reply was deleted.

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