Were you a member of our Forum on http://TransplantBuddies.com
Where did you hear about Transplant Friends?
Are You Male or Female?
Share - which illness led up to you needing a transplant?
I didn't have a transplant, my daughter had it. She was diagnosed with End Stage Renal Failure and the finally, a very rare genetic disorder called Joubert-Nephronophthisis.
Which Organ(s) did you receive? If you are on the waiting list, please share.
Drugs, vitamins, favorite foods
Prograf, Cellcept, Protonix My daughter loves hamburgers
How many years have you had your Transplant for?
She has had it for 6 years
I am Interested in Transplant Friends because...
I would like to "meet" others in an open forum to discuss any issues related to my daughter's transplant. Sometimes I feel like I am all alone in this....we receive no supports where we live.
Which Transplant Center has or will perform your life saving surgery?
Jackson Memorial Hospital/University of Miami
Share how your transplant experience changed your life?
My daughter's health improved vastly and she can do more. Prior to the transplant she was lethargic and every body system was failing.
Share whatever information you want us to know about you
I am not only my daughter's mother, I am also her primary caretaker and legal guardian. The diagnosis my daughter received prior to her kidney transplant was devastating. It has been and is quite difficult to find supports and/or care where we currently live. My daughter also has Autism on top of everything else going on in her young life and, this has complicated her care significantly. I try to do research on my own to find good options for my daughter's care but, sometimes this can become quite overwhelming.
Share your interests and hobbies
I am a professional artist and amateur writer. I love to collect antique porcelain, jewelry, travel, and read. I make jewelry in my spare time and am currently writing two books.
What Part of The World Do you Live? Feel free to share city, state, country
South West Florida
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