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Comments from my Transplant Buddies


Thank you to all for Sharing your thoughts and feelings about our website. Rise'
I received my kidney transplant in September of 1995 and till this site came into being I had very limited communication with other people who had transplants except for doctor visits and hospital stays. It is sometimes lonely walking the road ahead without any one to hold your hand and say I am here to walk with you and I understand what you are feeling. This is what this site has offered me-- a place where people hold out their hands and hearts and say "we are here, you are not alone". "We are not doctors, but we are people who have walked your path and we may not have all the answers, but we are here to support you." Rita Gallagher

TransplantBuddies makes me feel warm all over. I really enjoy helping people. I have also learned a lot. I wish I had found TB while I was waiting as I had so many questions. It would have been nice to have been in the company of such good, loving people back then, but at least I am here now. Like Rita said, "We are not doctors", but we can share our stories and experiences and give a lot of love and support to each other. Hugs, Meagan
TransplantBuddies is the best support network ever. I have made so many wonderful friends, who truly understand what I am going through, pre- and post-transplant. I'll never forget The Wait, and the support I received when I asked for tips on getting through it ... I realized then that I wasn't alone, that there were many amazing, strong, loving people who'd been through the same thing, and although everyone's journeys are different, we can share our own experience of our journey, and everyone listening can take the pieces that are relevant for them. The most important thing is the sense that you are definitely not alone! There are others who have been through this, and so can you :-) Much love, Yeages aka Rainbowmom

It's like having access to a library. So many generous and sharing people who have all shared one thing in life. Your different views and help whenever you have a question or concern. Problems are always easier when they are shared. Joe Berry-
At this time, last year I could not turn on A computer. We did not own a computer. Our only son, Jeremy, donated on Easter morning at 3:00AM. I was broken. As we walked to the parking garage I realized the people they are flying in are about to have some serious surgery, we need to pray for them, we did. In May we got the computer, I kept looking at it thinking "There is help in that thing for me." In June I typed in "Grieving the death of an adult child." 11 pages of sites came up. I clicked on the 4th site "Compassionate Friends" then clicked TRIO. They helped, then I read... TransplantBuddies.org brings us all together, recipients, their families, living donors, their families, donor families. I joined and everything I read was so supportive, loving, informative... I got up the courage to post & did so in DAP'S Blog. Then he said it was fine with him. By the time I posted to introduce myself, I was home. I said ," I found Y'all and thought "My People!" I wasn't alone, in fact I was no where near alone.God sent me to the only place on earth I would heal... Love to all of you, Kate/Jeremy's Mom

This site makes me feel warm and fuzzy all over. I stumbled on it immediately after my transplant when I was feeling totally surreal and overwhelmed, and was welcomed with open arms. As other people have written in with problems I have been in awe of the knowledge base of all the participants, but even more so the huge heart connection. It has allowed me to give back in a small way by being able to support other people who are having a difficult time. It a true blessing. –Diane
Transplantbuddies make me feel welcome,not only supported, but impowered. I feel so blessed to be safe here. I feel safe to ask, or tell y'all things I can't say to my family and friends, without someone pouting. I feel at home, I feel like smiling during the day when I think of something funny someone posted. When someone I love gets Their call, or gets over a bump in the road. I feel like I've known you all of my life. I feel I've learned so much here. Also, I feel like y'all will overlook my really stupid post... Love, Kate

Rise' Transplant buddies is a safe place for me. I come here with problems and I get answers. I come here with questions and get great input. I come here just to read and gain knowledge. The first thing I came here seeking was advice on writing to my donor family. I don't discuss this with my family and friends. Here with my transplant friends I know that the advice I'm getting is from friends who understand the overwhelming need to thank my donors family. There is no judgement or reservations just honest answers. I've found that with every post I've ever made. Finding transplantbuddies was like finding a raft when I felt lost at sea. How lucky we all are that you created this wonderful site! CJ-

I feel like I have found people like me finally. People who understand. It makes me feel like I am not alone in this. Seeing what people on this board have gone through makes me feel like I can handle anything that comes my way. Sarah I received a call on January 29,2010 that after 3 years of wait I was being moved to top of list for lung transplant. I relocated from my home and I was feeling anxious, isolated and alone until I found this website. It's been such a blessing things do happen for a reason, I am still waiting for that call but now when I start to feel alone I go to my new friends on "Transplant Buddies" and know someone is there. I wished I would have found this site 3 years ago it's such a wealth of inspiration and information. Thanks for this site Pam

Each and every on every one of us have a story. Mine is a unique because I'm one of the few adults that a) didn't know he needed a new heart and; b) didn't know he received a new heart until days AFTER the transplant. With that being said, I was thrust into the world of organ transplantation at the speed of light. Once I got home from the hospital I was on the quest for as much information about organ transplants as I could find. To me, knowledge has always been power. One of a handful of sites that I stopped by frequently during that first year was TransplantBuddies. The amount of topics discussed and the honesty of the posters is what brought me back time and time again. A year and 2 weeks after my transplant I decided to join, and the rest is "history". "History" in this case means great friends and greatly increased knowledge. Part of my desire to volunteer at my transplant center was fostered by the great people on TransplantBuddies. My hat is off to each and every one of you on this site ...... you truly humble me. DAP

It's my daily visit with my friends and comrades. Where I can help those who need it and in return get help when I need it. It's the first place I visit each morning - it makes me feel like I'm giving back or if you prefer - paying it forward. Rocket Heart

This site gave me me so much support. It was one tool that really helped me get through a lot of "issues" I could vent,cry ,laugh, joke, be silent and just read, ask for help, ask for opinions. What ever I was looking for I found it here. I am so grateful to have had this site to go to. Thank you everyone! you have touched my heart. Holly P.S. I searched a lot of site and this is the only site I've stayed on.

Transplant Buddies is my second home. I found Transplant Buddies when I was desperately searching for good positive stories about lung transplant. For 8 months I was in denial that I needed a lung transplant. I clicked through a few sites that had come up on google and then I found Transplant Buddies. I read every story on the site and then joined the group. After posting for the first time and getting many very supportive and loving responses, I knew I had found a home. The friends that I have made from this site will be friends for life. They have all been extremely supportive as I went from the evaluation to the wait and finally to my transplant. I will never forget the outpouring of support for me and my family as I recovered from my transplant. I am honored and humbled to be a part of this group of people. I have never met more compassionate, loving, caring, and honest people. This site has not only brought me love and support, but joy and laughter. We not only support each other, but we celebrate life and it's ups and downs. We celebrate recipients, donors and their families, caregivers, and all those that make organ donation possible. Thank you Transplant Buddies friends! God Bless! Karen

Breathing doesn't seem like a big deal, until you can't do it on your own anymore. Everyone on the lung forum knows what that means, and that somehow makes it less scary for me. Jo

Transplantbuddies for me is my extended cyber family!! I can come hear and ask anything, talk about just about anything, vent. The people on Transplantbuddies are a loving, caring, informative place for me to come. We all have a special bond even if your new!! I love my families!!! Melissa 2008 kidney/pancreas transplantee

I just enjoy connecting with people who have been through what I have and understand. I am a veteran liver transplant recipient so I also hope I am helping those who are new to this. Terri

Transplant Buddies is an extended part of my family. When I first joined, I was recovering from my kidney transplant. After posting a few times I was amazed to get, and continue to get, good advise, support, understanding, and when needed an unbiased point of view. I finally found people that have been in the place am I currently in and it has led to the reassurance that everything will work themselves out. I believe Transplant Buddies has helped me and my attitude, toward things, grow. And now I am proud to be one of the Forum Leaders that encourage and support and offer my help to everyone to get thru this exciting and trying time in our lives. If we all stick together there is nothing we can't conquer. LOVE, Kristi
Dear Rise' Even though I havn't been on the web or posted here since my transplant, I'm not sure how things would have worked out without transplantbuddies. I was terrified of liver cancer and the thought of having a transplant, much less two, with many very serious complications. Getting the courage is one thing but hanging on to hope and faith that things would get better after things get worse is another. Thanks to transplantbuddies I found someone to give me the hope and faith to keep getting better. Thank you so much! Cactus
I am still new to Transplant Buddies but I have found the site and chats to be of great support. I mentioned to a friend that I found on this site that since the "breaking news" I have been some what alone in learning, battling feelings, battling financial institutions and everything else associated with what is in store for me (I am Pre TX.) However, I found support from people all over the U.S. as well as other countries through TX Buddies. Other than having one commonality - I knew nothing of these people to start, but everyone was quick to welcome me. I feel fortunate to be a part. Thank You! Scott
Transplant Buddies helped to prepare me for the next step. I am very glad that my wife had the foresight to do some investigation into transplant websites. Although I did not have the advantage of having some of the knowledge that I wish I would have had before transplant, I have benefitted from it post transplant.( I did not get on the site until after transplant) My next step will be coming soon in the form of mentoring others. I only hope that I can be of as much benefit to others as Transplant Buddies has been to me, despite my crummy jokes. Ciscokidney07--------- Join us http://transplantbuddies.com

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Catching up

I am truly going to get this down and blog more and communicate with all of you who have sent me e-mail. Kind of home bound right now with all the flu and sniffles going around. So there isn't any real excuse for my inattention to this great web site.
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Follow a Kidney Transplant - April 2nd

Follow this awsome story of Juliana Casey (recipient) and Leslie Kroshewsky (donor) at http://cotaforjulianac.com/.Juliana and Leslie will be in pre-op the entire day on Thursday, April 1st, and then the transplant is scheduled to begin at 7:00 a.m. on Friday, April 2nd.The JourneyThis miracle could not happen at a better time. Juliana recently had to increase her dialysis from 8 hours per day to a minimum of 16 hours per day. Soon, if a donor match had not been found, Juliana would have had to undergo harsh hemodialysis for her disease since the dialysis was becoming ineffective. Juliana was diagnosed with Lupus 8 years ago and has been on dialysis for 5 years.The journey does not end with the transplant. Juliana will be treated with anti-viral medications for 6 months post-transplant, and will have to take anti-rejection medications for the remainder of her life. While most donors report positive outcomes after donation, there are still risks and we ask that you keep Leslie in your prayers for a successful and long-lasting recovery and continued health.Juliana has been studying and practicing the science of nutrition through macrobiotics, and attributes this practice to the fact that she was able to greatly reduce her visits to the hospital over the last year and a half. She began attending the Natural Epicurean Academy of Culinary Arts, but had been studying macrobiotics on her own prior to enrolling. Juliana is determined to nourish and cherish Leslie’s donated kidney with her newfound knowledge of macrobiotics.Juliana will be blogging on her website, so make sure to visit the website frequently.
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Carol

I am a grateful kidney/pancreas transplant lifer:) Had transplant on feb 15, 2008. I am doing very well since then, but have several issues that were with me before the transplant that have affected my energy. I am excited to be alive and I love to share stories with other transplantees.
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Hi this is Lisa:I was just wondering how many of you are dealing with the predisone causing high blood sugar. I had an issue right after transplant, but by the time I left the hospital they had settled down and I did not need to take any shots of lantus. Now two months later I am having high sugar levels again and they haven't changed my doses. Appreciate any info on this. I see my Dr. this week.
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A letter from Terry

Hi Folks, sorry it's been a while...I received this email to my web-site a couple of days ago and I thought I'd publish it (thanks Terry) and my reply to it - it says a lot ..... IanHello Ian,I too am a liver recipient. Mine was given in October 2008 because I was suffering from end stage cirrhosis. I was ill for three years prior to the operation and very ill indeed for the last three months. As I live on Grand Cayman, my procedure was carried out in the US at Broward Hospital, Fort Lauderdale, Florida.Hearing of your progress brings back many memories. You seem to be making much faster progress than I did. 3½ weeks after my operation I was in the Respiratory Care Unit (a "Step Down" Unit, half way between Intensive Care and the ward), having spent over two weeks in I C first. Then it was three weeks up on the ward and finally six weeks in rehab.Now, nearly eighteen months later, I am wonderfully well and happy. I take 1 and then 2 prograf alternately every morning (10 or 11 a week). I take one dapsone ever Monday and that's it.Just before the transplant I was taking over 50 pills a day!I also have felt the urge to write. I have started a blog that contains stories and episodes from my life. As I came so near to death - one or two weeks - I am putting in writing some of my memories. There's nothing about my medical experiences yet but I am sure that one day they will appear.I suffered from, "ICU Psychosis" after the op and had many hallucinations but no nightmares. I confidently told my wife one day that one of my nurses was Gwyneth Pa;trow. That surprised her but when Gwynneth appeared, I coughed and nodded at her. After Gwyneth had gone I asked Caroline what she thought. "That's not Her," she said. "She is black but Gwyneth Paltrow is white.""Not when she's nursing," I snapped.Keep going. My thoughts are with you.Terry.And my reply...Hi Terry,Thanks for your e-mail, I've got to say it was the most inspiring message I have had in a long time.As you can probably tell from my blog site, I haven't posted for quite some time. This has been due mainly to the fact that whilst struggling to recover from my transplant, I haven't had either the energy nor the inclination to write.I always thought that following the transplant that I would go home from hospital and just keep getting better and better. I know now that this is not the case. I find in some cases you have good days and bad days, but more often you have bad days and worse days. That being said I feel physically as though I have progressed comparatively more quickly than most. However psychologically and emotionally I have found my recovery to be a complete roller-coaster.I know that after only seven weeks or so after my op that my doctors etc are very pleased with my progress however I tend to feel whilst I am alive, I am not really living. So after reading your story of how long it took you to recover I realise that I am being far too impatient. Sometimes hearing stories about you and Gwyneth are all you need to realise it. A good laugh is always the best tonic.Please write me back and let me know your blog address, I would love to catch up with you and find out how you're getting on and I hope you don't mind but I am publishing this letter on my site as a precursor to my return to writing and hopefully some more video diaries. This could be difficult as my little boy dropped my camera the other day and smashed it to pieces! Nevermind, I've still got my web cam.Thanks again Terry and please give my love to your very understanding wife and two Gwyneth if you see her again in whatever guise. I read my e-mail to my wife and it made her laugh so much probably because she related to it so much more than I - God knows what she's had to put up with!Speak to you again soon and keep well.... Ianianquill@hotmail.com or riosbarandgrill@googlemail.comfollow my blog: http://www.ianquill.blogspot.com/ (IAN QUILL : MY WORLD)find me on 'facebook.com' or 'tweet me' @ianquill http://www.twitter.com/
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Transplants for citizens of Mexico!

I recently returned from meetings in Mexico with government health officials and transplant surgeons in Mexico City. Mexican citizens are eligible for human organ transplants immediately. There is no waiting time! Mexican law bars cadavder organs being transplanted into foreigners in order to prevent exploitation. There is a surplus of organs for citizens no matter where they reside, inside or outside Mexico. I toured the surgical facilities and met with the surgeons at ABC Hospital in Mexico City as well as Angeles Hospitals in Tijuana and Mexico City. The facilities are first class and are Joint Commission International certified.If you know any Mexican citizens residing outside Mexico have them contact their local Mexican Consulate or me. There are no middlemen involved. A transplant at a government hospital can be free. Private facility transplants cost an average of $30,000.00 at private hospitals.I post this information only because I don't want anyone who can cut their waiting time down legally to take avantage of this if they can qualify through Mexican authorities.
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Birthday

I just wanted to say thank you all for wishing me a happy birthday I had A good day. Today is my husband's birthday to he Is a year older them me but he is doing fine since his transplant in August 2007. We are thankful we found the transplant buddies when my husband was so sick in the hospital and I did not know if he was going to live or died.
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MY "SECOND TRANSPLANT" STORY

Prior to my kidney transplant John and I were very heartbroken because of the loss of our unborn baby at 17 weeks and the loss of the kidney that my mom gave me back in 1998. BUT God was gracious to me again, in that he allowed me a second transplant after being on dialysis for only 3 ½ months. I received a 2nd kidney transplant in May of 2007. This time... the donor: a baby.It was a very unusual circumstance in several ways. First, the doctors said to expect a long wait time for a new kidney because of some situations with antibodies in my blood So, of course, I was not expecting anything in the way of a transplant to happen anytime in 2007. So, just waiting 3 ½ months was a blessing. Second, the fact that I was given TWO kidneys, as opposed to just one, to me, is a miracle!!!! THIRDLY, to receive BABY kidneys after losing the little baby that John and I had been praying and waiting for… was beyond comprehension.Well, when I received these two kidneys from a little baby just three days before Mother's Day, I was humbled and heartbroken. I understood, somewhat, the pain that this dear mother was going through. I wrote her a letter back on July 5, 2007, just to thank her in some small way for the precious gift she gave and to try to share with her how sorry I was for the loss of her dear child.Well, evidently, this woman never received my letter, judging from what she wrote in her letter to me, but that is not the point. I had an appointment today at Baptist (just a regular check up) and as I was going down the road, I was just thanking God for His mercy and His grace and for being so good to me when I didn't deserve it. I have traveled that road to Baptist SO MANY TIMES in the past 10 years. I have had trips where all I could do was weep before God asking Him why. But there have been MANY trips where the Lord and I have had some Hallelujah good times!!! Today was one of them. Just when I thought it couldn't get any better, I came home today and found a letter in my mailbox from my donor's mom. WOW! I could hardly wait to open it. As I read it, I wept and wept and wept.Let me share with you why…This precious woman explained how she has three beautiful little girls. One was my donor baby who was 15 ½ months old at her death. She went on to say how she was "full of of life" and "happy all the time" and a "perfect piece of [her] life" Baby girl died one day in the spring of 2007 as a result of being found unresponsive in a pond. The doctors did everything they could to save this litter girl. Her mother was devastated. As all of you can imagine. But she was approached by a family support counselor from Lifepoint who shared with her the importance of organ donation. Mom admitted that after speaking with him she was "shocked at the thought of removing anything from her baby girl's body". I don't blame her. So what did she do???? This is word for word what she wrote to me (names have been removed... I was not thinking of this precious saint's privacy, God forgive me):"I went back to ______bedside and began to pray. I asked God to show me what to do. I cried a lot and prayed some more. I feel like God answered me directly, the answer was perfectly clear. If my situation was reversed and ____, ____, or _____needed a transplant, I would be praying just as hard and hurting just as much. I would want someone else to choose donation."And this is why I JUST HAD TO SHARE this with you. God is working when it SEEMS to be like nothing is working. He loves and cares for us so much. His ways are so much higher than our ways. Here I was thinking…when God? How long? But after God gave me sweet peace --He sent me the gift of a second chance. And that through a precious Christian woman! The fact that she is a Christian is what makes me so overcome with emotion; I can hardly type this. My precious Saviour shared with one of His little children in prayer what to do and she did it. No matter how painful the situation we have a SAVIOUR who is listening and who cares. Through my pain and John's pain and that precious woman's pain, He worked. She has the peace of God. She is still going through difficult times, but she has peace. And here is the best part of what she wrote:"My hope for you, live a long and healthy life. I know God has something very special in His plan for you, He was definitely working for you on May 7, 2007. If you don't already, please look to him in all you do. He will show you the right way. We would love to hear from you."And she signed it "Love in Christ" HALLELUJIAH! HE IS SO WORTHY TO BE PRAISED! Some of you may not even understand where I'm coming from or how wonderful this is, but some of you know exactly why I am so excited and I feel so blessed and so undeserving and so awed at the awesomeness of God. I thank my Christian brothers and sisters, my family, my husband and son and especially my Pastor for lifting up prayers on my behalf during (and since) that time. God worked it all out.Right after the surgery, I shared with my pastor and my husband that I would not be surprised if this was a Christian family. But now that I KNOW this is a Christian family, I am floored.Jesus Christ is the answer TO ALL OF LIFE.O the depth of the riches both of the wisdom and knowledge of God! how unsearchable are his judgments, and his ways past finding out! -Romans 11:33[God] Which doeth great things past finding out; yea, and wonders without number. -Job 9:10Love in Christ!nae*** Names have been removed to protect the family's privacy.****

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Today

Wow, the group is bigger than I thought..I just want to introduce my self as " Diehard20 " a little too soon, ST Patrick's Day to be exact. 20 years liver transplant, 1990," old school " protocol?? I still take cyclosporine, Imuran, and nasty prednisone. Prednisone, jump started me when I went into rejection after years, not if but when? IV prednisone dosages, took their tool. Now after 20 precious years and counting, I have had to deal with Avascular Necrosis too. Every morning, I'm reminded why I'm wearing this brace to keep my left hip from popping out again. Security blanket, it helps when the Pain is the deterrent to excruciating pain, element of surprise at that. I'm no stranger to this brace, ER, going under to manipulate my dislocated femur again. I think a third replacement is in the near future, on just the left hip. Bi laterals done years ago. In between a knee replacement. ( shoulder tear on my rotor cuff, spurs a given ) I 'm not defining myself like my life time medical chart!I'm so much more than that. Everyday, Karma is crucial to get up to a great day, that I make happen. Courage, the unknown road that is ahead of me..I'm not alone, or lonely ever. I turn my life over to God, so many years ago. It is what it is,God's Will be done forever.Thanks for listening " go on " rambling. It's so good, to see, were out there, making contact. I'm a good listener too. Your stories are so amazing and so much the same for me too. Been there, done that " Have a great weekend, Oscar Night ? LOL
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2/21/2010

Copied from my blog on TransplantBuddies ~

2/21/2010 ~

It's been a very nice weekend. We have had zero snow for a number of days, and we've actually had a bit of a nice melt going on yesterday and today. Apparently there's some freezing "stuff" coming in tonight, but is supposed to be gone my morning.

Yesterday, I had to be re-accreditated so I can continue to volunteer. Most of it was fairly mundane, but they had an awesome ICU nurse from my transplant center there to speak. Incredible stories, I could have stayed and listened to her for hours.

Today, we went to the movies and saw "Brothers" with Tobey Maguire. An intense film about a war vet with extreme PTSD (Post Traumatic Stress Disorder). Very intense! Not that all of us go through war, but we do go through periods of high stress a number of times. I'm sure I even experienced some level of PTSD after my transplant. I'm sure my wife experienced even more. This is a topic that I feel the need to investigate a bit deeper. Very good movie, though!

This evening we were at my sister's helping her for a little while with her 4 month twin grand-kids. We fed them, played with them ........ there's nothing quite like a baby just to make everything feel right with the world, even if only for a few minutes.

Here's Ayla & Austin (respectively)


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Blog

My husband had a liver transplant on October 6th 2008. After a long recuperation he is now doing really well and has a real joi de vivre! He has started a weekly blog of ramblings and stories to capture the fun things that happen to him now he is running on 'bonus time' and to share the events that shaped him pre-transplant. You can find it at http://ramblingsandstories.blogspot.com. Hope you find it entertaining!
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2/19/2010

Copied from my blog on TransplantBuddies ~~

2/19/2010 ~

Thanks Meagan, Andrea and Holly for the nice comments.

It's been a very busy week here, yet it seems I have accomplished very little. Snow removal finally ended yesterday, and it has been so repetitive, that I think that's where a lot of my time has gone.

Mom is doing fine since her fall, but she requires constant checking. Or, in my mind I feel I MUST check on her a lot, LOL.

Another big chunk of time has gone to TurboTax ........ and that will continue over the next few days, I'm sure. I just can't work on taxes non-stop, as it drives me crazy.

Despite the weather, I did go volunteer on Wednesday. A day of emotional ups and downs. One transplant, another out of ICU after a long stint there were wonderful things. Then there was news of a good friend that lost the ultimate battle, reminded me, once again, that life is too short. The world lost another truly remarkable person!

This morning, the sun is shining, and I will life, enjoy the day, and be VERY thankful for every heartbeat I have.

Three generations at Christmas time ~

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A Brand New Me! http://www.ianquill@blogspot.com

A Brand New Me!

Hi everybody, this is the first time I’ve stuck my head above the parapet since I GOT A BRAND SPANKING NEW LIVER!!! The doctors say I'm doing amazingly well and everything’s fine.


Sorry to keep you all hanging on, I came home late on Thursday but I've pretty much just slept since then. It seemed to really take it out of me, trying to adjust to being home but then I suppose in the grand scheme of things that’s OK.

I was in hospital for almost exactly 2 weeks and would have been out sooner had I not got an infection in my right lung!

I’m coming too now though but I do get very tired so I’ll write you when I can. I may even post some video diary stuff when I’m up to it.

I'm very sore and my tummy looks like I was patched up after the Texas Chainsaw Massacre (with about 150 or so stitches and staples in my guts) but in terms of my head, I feel absolutely fantastic. Such clarity - I felt like my brain was shackled with a ball and chain before the op but now I feel like running a marathon..

Though I wouldn’t recommend you try this at home kids, I will say that it was probably the most life enriching experiences I’ve ever had. Its right up there with watching your children being born or having some kind of epiphany moment - maybe more so...

Anyway, I thought I better just drop you all a line to let you know I'm doing bloody marvelous, Mandy says sorry for not doing emails and stuff but I think she's just about knackered by now, it was a 3 hour round trip just to come and visit me every day, on top of everything else, like the kids!!! Our families have been absolutely fabulous though and really helped out; so it’s a great big ‘Thank-You’ to all of them.

And whilst we’re on the subject of thank-you's, thanks to all who have emailed to pass on best wishes and their kind thoughts over the last 2 weeks, it’s really appreciated and nice to come home to, it may take me a little time to get back to you all though but I’ll get there.

OK, I'll get off now and sleep some more (I do keep going for walks and stuff in-between) but keep an eye out for me over the next couple of weeks and I’ll tell you all about how it was for me.

Keep well everyone.... Ian
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My Transplant

Hi, my name is Sam and i am from Australia.

I had my liver transplant in 1986 in Sydney (Aus). I was born with bilary atresia.

I was 2 weeks old when doctors discoverd that's what was wrong. Because I was a baby i dont't know all the surgry i had done before my transplant.

I was on the wating list for bout 2 yrs, when i was 22 months old an adult liver became avalible. Because the doc's were unable to find a childs' liver they had to cut down adult liver.

So i was the first Aus to have an adult cut down liver.

Its been 23 years since my transplant now.

I have had some problems as i suffer from cholangits, have had rejection due to doc changing my antirejection drugs.

I think over all iam doing pretty well, i have great doc's that keep close watch on me.

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What is The Waiting List

The Waiting List is a national multimedia storytelling project sharing the stories of those waiting, those touched by, and those involved in the organ transplant process. As a collective of storytellers united by a common passion for stories and a shared desire to make a positive social change, each contributing filmmaker, radio producer, writer, photographer, etc. will use his or her talent and point of view to reveal the humanity behind the statistics of organ donation in a fresh and compelling voice. The Waiting List is not interested in just the medical condition. We invite and challenge the contributing storytellers to explore the person who is living his or her day-to-day life, while ironically eagerly waiting for their gift of life. 90 % of Americans say they support organ donation. Yet only 30% know how to thereby resulting in only 35% of licensed drivers registered as organ donors. With many states now offering an online registration process, this single health crisis is statistically solvable. The Waiting List will be part of the answer. Through the power of storytelling, The Waiting List is convincing people to understand the significance of registering as an organ donor. We will introduce the names, faces and stories of more than 100,000 people whose lives are impacted by this
one decision – becoming an organ donor can be a final act of kindness that could save the life of up to eight people.


Website: www.thewaitinglist.org

Trailer: www.thewaitinglist.org/trailer.mov

Campaign: www.yesiamanorgandonor.com

Support: www.southerndocumentaryfund.org/projects/the-waiting-list


If you are currently on the organ transplant waiting list and are interested in sharing your story with The Waiting List, I look forward to hearing from you. You can email me: info@thewaitinglist.org.


We are also part of a national contest sponsored by Pepsi: www.refresheverything.com/thewaitinglist. If and when we win, we will start a photography program for children at transplant centers. You can vote once a day, for the duration of the contest. I need your help, please share this with your network of family and friends. This photography program is a crucial component to our use of storytelling and photography to inspire individuals to register as new organ donors. Together we will help end this wait.


Thank you.


David Y. Lee | Creative Director of The Waiting List


Read more…

Hello!

Hello everyine here at Transplant friends. My name is Joe and I'm a heart-lung transplant survivor here in cold and snowy Northwest Indiana. I recieved my transplant in 2002 at Loyola Unuversity Medical Center in Maywood, Illinois.

Because of a few setbacks I was in the hospital and rehab centers for 8 straight months in 2003. I survived all of that and have been home ever since. I have since went back to work in 2004 through 2007 and now am at home taking care of my aging mother, doing all the household things that I couldn't do before the transplant.

I also writtten three books. The first one is "Vision of the Field: A Baseball Fantasy," on Lulu.com. This book is a novel, but it is based on my experience in getting my transplant.

The seconf book is called "In The Company of Legends," on booklocker.com. It's about a baseball player who couldn't hit until he get the help from the spirits of Babe Ruth, Lou Gehrig and Ted Williams.

The third book recently came out. It's a science fiction book on the order of Star Wars and Pirates of the Carribean. It's called "Space Pirates" and you can get that on Lulu.com

I plan to use this space for my regular blog which I present on Wordpress.com and other sites. While it's not always on the transplant experience. I hope you will take a look and enjoy what I write about. Comments are always encouraged!

Have a good day and peace to all.
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Looking for My Kidney Hero

My dear Friend Susy G - a double lung transplant survivor is in need for a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!

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